Medical Professionals
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Meet Tatum T. Tatum was born a little over 3 weeks early in May of 2023. When she was born,...
sjogren-larsson
Meet Mia C. Every once in a while, “perfect timing” is more than just an eruption of coincidental moments…it is,...
Sjögren-Larsson Syndrome Form of ichthyosis associated with neurologic symptoms including developmental delay, spasticity, and intellectual impairment, caused by abnormal lipid...
Recently Published Research Summaries Members of FIRST’s Medical & Scientific Advisory Board provide a review of current ichthyosis research articles.
congenital ichthyosiform erythrodermaEDDsjogren-larssonx-linked
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