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DATE: 10/5/2026

2nd UFIRST Scholarship Cycle Now Accepting Applications!

2nd UFIRST Scholarship Cycle Now Accepting Applications!

With many thanks to Beiersdorf, makers of Eucerin and Aquaphor, FIRST will be accepting a second round of applications in...

UFIRST-ANNC-DUFIRST-ANNC-FUFIRST-ANNC-FALUFIRST-ANNC-FHUFIRST-ANNC-U

DATE: 10/5/2026

FIRST Launches Emerging Leaders Program

FIRST Launches Emerging Leaders Program

LEAD. CONNECT. MAKE AN IMPACT. The FIRST Emerging Leaders group is a non-governing group of emerging leaders who want to...

DATE: 09/24/2026

New Study Offers Clues About Inflammation in Congenital Ichthyosis

New Study Offers Clues About Inflammation in Congenital Ichthyosis

Researchers are learning more about how the immune system may contribute to the severity of some forms of congenital ichthyosis....

DATE: 09/16/2026

Eileen Uthuppan

Rare Belongs in Every Room: The Story Behind SKINRARE

Rare Belongs in Every Room: The Story Behind SKINRARE

What started as a vision to create a space for a community that often feels overlooked became something much bigger...

DATE: 08/28/2026

Breaking the Itch-Scratch Cycle: A New Look at Habit and Mindfulness

Breaking the Itch-Scratch Cycle: A New Look at Habit and Mindfulness

Could curiosity help interrupt the itch-scratch cycle? A recent Dermatology Times article explores how understanding the brain’s habit loops may...

DATE: 08/24/2026

Amy S. Paller, MD

Congenital Ichthyosis Tied to Risk for Allergic Disorders

Congenital Ichthyosis Tied to Risk for Allergic Disorders

Researchers looked at medical records to compare people with congenital ichthyosis with people in the general population. They found that...

DATE: 08/14/2026

How Ichthyosis Changes Throughout Life: What a New Study Found

How Ichthyosis Changes Throughout Life: What a New Study Found

A new international study surveyed 222 adults with different types of congenital ichthyosis to better understand how living with ichthyosis...

DATE: 08/03/2026

Diya & Aliya Friends Fund Applications Now Open

Diya & Aliya Friends Fund Applications Now Open

The Shahnaz Kraybill family realize that the fight against ichthyosis is not only medical but also financial. As families of...

DAF-ANNC-CDAF-ANNC-DDAF-ANNC-FDAF-ANNC-FALDAF-ANNC-FHDAF-ANNC-UDAF-ANNC-W

DATE: 07/07/2026

Bailey’s Broadway Birthday Bash Hits a High Note Once Again!

Bailey’s Broadway Birthday Bash Hits a High Note Once Again!

Bailey’s Broadway Birthday Bash was another success! Held on June 20, 2026, it was a celebration of Bailey Fabiano’s birthday,...

grassroots

DATE: 06/30/2026

A Life-Changing Weekend

A Life-Changing Weekend

From June 26–28, 2026, the FIRST community came together in Minneapolis, Minnesota, for an unforgettable National Conference. It was three...

conferences

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.