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Recent News

DATE: 11/01/2026

FIRST-Aid Skin Care Fund Applications Now Open

FIRST-Aid Skin Care Fund Applications Now Open

FIRST-Aid is a program created to help provide meaningful support to individuals affected with ichthyosis in the management of their...

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DATE: 11/1/2026

Applications Now Accepted for Weary Air Conditioner Fund

Applications Now Accepted for Weary Air Conditioner Fund

Terry and Robert Melton have created The Weary Fund through a generous contribution in honor of Terry’s parents, Dr. Peyton...

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DATE: 10/26/2026

TEX264’s Role in Skin Cell Maturation: Insights from Darier Disease Research

TEX264’s Role in Skin Cell Maturation: Insights from Darier Disease Research

Study: How TEX264 helps skin cells mature-and what this may mean for Darier disease and ichthyosis What did the researchers...

DATE: 10/14/2026

Northwestern and Yale to Lead New NIH-Funded National Consortium for Rare Inherited Skin Disorders

Northwestern and Yale to Lead New NIH-Funded National Consortium for Rare Inherited Skin Disorders

A $5 million, five-year award establishes the Consortium for Hereditary Epidermal Differentiation Disorders (CHEDD) within the NIH Rare Diseases Clinical...

DATE: 10/14/2026

What New Research Tells Us About Skin Cancer and Congenital Ichthyosis

What New Research Tells Us About Skin Cancer and Congenital Ichthyosis

A large national health database is helping researchers better understand a question that has been difficult to answer: Are people...

DATE: 10/5/2026

FIRST Launches Emerging Leaders Program

FIRST Launches Emerging Leaders Program

LEAD. CONNECT. MAKE AN IMPACT. The FIRST Emerging Leaders group is a non-governing group of emerging leaders who want to...

DATE: 09/24/2026

New Study Offers Clues About Inflammation in Congenital Ichthyosis

New Study Offers Clues About Inflammation in Congenital Ichthyosis

Researchers are learning more about how the immune system may contribute to the severity of some forms of congenital ichthyosis....

DATE: 09/16/2026

Eileen Uthuppan

Rare Belongs in Every Room: The Story Behind SKINRARE

Rare Belongs in Every Room: The Story Behind SKINRARE

What started as a vision to create a space for a community that often feels overlooked became something much bigger...

DATE: 08/28/2026

Breaking the Itch-Scratch Cycle: A New Look at Habit and Mindfulness

Breaking the Itch-Scratch Cycle: A New Look at Habit and Mindfulness

Could curiosity help interrupt the itch-scratch cycle? A recent Dermatology Times article explores how understanding the brain’s habit loops may...

DATE: 08/24/2026

Amy S. Paller, MD

Congenital Ichthyosis Tied to Risk for Allergic Disorders

Congenital Ichthyosis Tied to Risk for Allergic Disorders

Researchers looked at medical records to compare people with congenital ichthyosis with people in the general population. They found that...

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.