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Find a Doctor

Search our global database of dermatologists and other specialists with ichthyosis training.

Learn About Your Type

Explore the largest ichthyosis directory in the world with over 30+ Types, including name variations and genetic designations.

Get Insider Resources

Your first stop for valuable resources like financial aid, PDF guides, and genetic diagnoses.

Join the Community

Connect to our global network of individuals navigating the challenges of ichthyosis and related skin types.

Proudly Celebrating 45 Years In our Ichthyosis Community

If you or a family member has ichthyosis or a related skin type, and is in need of support, education, connection, and compassion, you have come to the right place. 

We were chartered as a nonprofit in 1981 and we are currently the leading patient advocacy organization in the world for individuals with ichthyosis and related skin disorders.

We are deeply dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types.

1981

Founded

45

Years of Impact

$2.2M

Research Funding

1,600+

Registry Participants

ACADEMIC & CORPORATE PARTNERS

Upcoming Events

Join us at one of our upcoming events!

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  • New Member Orientation July 2026
    by Foundation for Ichthyosis & Related Skin Types, Inc.

    New Member Orientation July 2026

    DATE: July 7, 2026 @ 5:00 PM
    LOCATION: Zoom

    DESCRIPTION: Please join FIRST CEO, Christopher Boynton for a live Zoom to learn more about the programs and services that FIRST…

    Free
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  • 4th Annual Cornhole Tournament
    by Foundation for Ichthyosis & Related Skin Types, Inc.

    4th Annual Cornhole Tournament

    DATE: September 12, 2026 @ 1:00 PM
    LOCATION: 19044 Vanderhaven Lane, Livonia, Michigan, 48150

    DESCRIPTION: The Samantha and Adam Schlitt and Jane and James Goff are once again hosting their cornhole tournament. It will be…

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