Newborns
You can also explore our private Facebook Groups for ideas and support. In Facebook, search for “FIRST Ichthyosis” and all of FIRST’s private Facebook groups will come up. Request to join the group(s) that you qualify for.
The information presented here is for the pregnant woman with ichthyosis that intends to breast feed, in addition to widely found information on breast feeding in general. Due to the nature of ichthyosis, the constant renewing of your skin cells, you may come across issues that your health care provider is not aware of.
After your baby is born, many different types of specialists will probably be brought in on your baby’s behalf. Don’t let the number of professionals intimidate you. As you become familiar with each of them and their functions, you will begin seeing them as your baby’s healthcare team. And although it may be, at times, overwhelming, and even a bit confusing, remember, you and your physicians are on the same side; you both want what is best for your child.
Feeling at Home in the Neo-natal ICU
The Neo-natal ICU can be a frightening and intimidating experience. You will learn from parents and extended family that have been in the very same situation. They have shared stories and guidance on what to expect, how to cope, and how to make the NICU a positive and educational experience for your whole family.
