Life Stages
As if being a new parent isn’t hard enough, after your child with ichthyosis is born you will be presented a number of additional challenges to face. Here you will learn how to take full advantage of all of the medical professionals ready to help your child make it through their early years with as few complications as possible.
As your child gets bigger, new situations will inevitably arise. When they start going to school and making friends, helping them learn to cope with bullying can improve their mental health through out their lives. They will likely need to see their pediatrician more often than other children because of complications from caring for their ears, eyes and skin.
It’s important to understand the assistance and rights your child has when they start attending school. A teacher informed about Ichthyosis, taking advantage of accommodations, and ensuring your child isn’t discriminated against will ensure they are able to receive a good education and have fun while doing it.
As an adult with ichthyosis, there will be times when it is important to advocate for your rights. While at work, seeking medical care, or dealing with other situations that arise, you should know how to make sure you are comfortable and safe. Information about starting a family, aging, and retirement are also shared in this section.
