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Lifestyle And Wellness

This section includes information that will simplify living with ichthyosis through advice about common everyday chores like doing laundry and feeding yourself and family.

Don’t forget to check out FIRST’s private Facebook group for parents for ideas and support. In Facebook, search for “FIRST Ichthyosis” and all of FIRST’s private Facebook groups will come up. Request to join the group(s) that you qualify for.

At this phase, meeting affected adults at FIRST conferences and one day meet-ups can also be helpful for practical advice and serve as a powerful visual of what lies ahead.

Yoga For Skin

Yoga is widely recognized as a practice that will build muscle, increase joint flexibility, improve core strength, relax the overactive mind, and release tension. It does all these things, but did you know it can be good for your skin?

Nutrition

This resource explains key nutrients that support skin health, tips for eating well, and considerations for infants, children, and adults with ichthyosis.

Household Appliances

The daily skin care treatment for ichthyosis requires using large amounts of emollients on the skin which can be very harsh on appliances. In this section, you will find a collection of tips, from FIRST members, regarding the use and care of washing machines, dryers, and bath tubs.

Laundry Care

Just like with appliances, the daily skin care treatment for ichthyosis that requires large amounts of emollients on the skin can be very harsh on clothing. Here are more tips, provided by FIRST members themselves, including the best strategies and products for laundry care.

Traveling

Because ichthyosis is a disorder of inflammation, stress, change in climate, dry air, and food allergies can all lead to symptom flare ups. Anticipating these stressors can help minimize their impact and allow you to focus on your trip.

TSA – Disabilities & Medical Conditions

In this section, you can learn how to get through security checkpoints with the least amount of stress and the rights you have in regard to your condition and the things you need to travel with.

Weather’s Impact

People living with ichthyosis know that weather and climate can make a big difference in how their skin feels and behaves. Both hot, humid summers and cold, dry winters bring unique challenges. Understanding how temperature, humidity, and seasonal changes affect your skin can help you plan ahead and stay comfortable all year long. 

Reduce Sun Damage

Learn about the steps you can take to protect your skin and reduce the damage caused by over exposure to the sun.

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