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Scalp, Fingernails, & Scratch Care

Itching and scalp scale are common and frustrating symptoms for patients with ichthyosis, particularly in  children as they are unable to “resist the itch.” However there are some tried and true practices that can help soothe the itch and make your child more comfortable. 

  • Itching can be treated with oatmeal and oil baths and plenty of cream or lotion. Lotions with oatmeal as an active ingredient can be soothing as well. If the itching persists, your doctor can prescribe oral and/or topical medications.  
  • Applying cool compresses to the affected areas may help to relieve the itch.  
  • To remove difficult scales on the scalp, try applying your favorite lotion liberally to the scalp, then put on a shower cap or other occlusive garment for the night. In the morning, shampoo, massage, and comb out.  
  • Many parents have also reported using coconut oil with great success for softening and  removing scalp scale. 
  • Place coconut oil or baby oil generously on the scalp while bathing. Let it soak for 30  minutes. Wash and rinse. Immediately comb out the scales that are now “mush” with a fine tooth comb trying to get underneath the scales and combing in lots of different directions.

“We doused her head with baby oil, let it set and then combed with a fine tooth comb. You just have to be careful and go SLOW as you have the potential to lift large scales that aren’t ready to come off.” – FIRST Parent, Kelly Robinson