School and College
For many at this phase of life, connecting with other parents and students can help. Don’t forget to check out FIRST’s private Facebook groups. In Facebook, search for “FIRST Ichthyosis” and all of FIRST’s private Facebook groups will come up. Request to join the group(s) that you qualify for
Also, meeting affected adults at FIRST conferences and one day meet-ups can be helpful for practical advice and serve as a powerful visual of what lies ahead.
Read on for resources that reflect member and medical professional advice.
FIRST is happy to provide you with the resources that you will need to make sure that your child’s new teachers have all of the information necessary to understand how ichthyosis will affect your student.
Special Education Accommodations
Learn about Individualized Educational Plans and get a resource sheet designed to inform those families affected with ichthyosis about the options available for special accommodations.
Understanding the protections that exist for children with special needs can be a daunting task. But it is critical for parents who must advocate for their children – ensuring that the child is receiving every protection they are entitled to under the law.
School Survival Guide for Parents
This article will offer some suggestions on how to set your child up for success at school this year, whether it is your first foray into the educational system or your child is already attending school.
Going off to college, for anyone, is never an easy transition. Add in a rare skin condition that requires extra time, attention, and often, an explanation, and it can produce a whole new level of stress. Over the years members of FIRST have shared advice, tips and real-life college experiences and here we’re sharing the best-of-the-best “college survival” how-to’s.
