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Tag: member story

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Angie and Harper’s Story

Angie and Harper’s Story

Meet Angie and Harper – Washington State Harper Helped Me Find My Voice: How one mother’s love became a mission...

harlequinharlequin storymember story

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Bako’s Story

Bako’s Story

Meet Bako M. – Iraq Turning Challenge Into Purpose: Living with Ichthyosis and Pursuing Pharmacy in Iraq My name is...

member story

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Htwe’s Story

Htwe’s Story

Meet Htwe T. – Myanmar Finding Dignity in the Skin I Live In My name is Htwe Than. I am...

lamellarlamellar storymember story

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Tia and Kole’s Story

Tia and Kole’s Story

Meet Kole S. – IN From Collodion Baby to Confident Teen I remember back in 2012 when this little baby...

CIE storymember story

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Abby R’s Story

Abby R’s Story

Meet Abby R. – IN My Journey with Ichthyosis Hi everyone! My name is Abigail or Abby, for short, and...

member story

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Jeff G’s Story

Jeff G’s Story

Meet Jeff G. – Australia Where I Am Today As Ichthyosis Awareness Month (May) came to a close, I wanted...

lamellarlamellar storymember story

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Samiha C’s Story

Samiha C’s Story

Meet Samiha C. – Bangladesh The Story of Dr. Samiha A disease is considered rare when it affects a small...

ichthyosis vulgarismember storyvulgaris story

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Janice S’s Story

Janice S’s Story

Meet Janice S. – Canada Reflections on life with lamellar ichthyosis It doesn’t go away, but it does get easier....

lamellarlamellar storymember story

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Cassandra K’s Story

Cassandra K’s Story

Meet Cassandra K. – Tennessee My name is Cassandra. I’m 34 and live in Monroe County, Tennessee. I have a...

darier diseasedarier storymember story

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Nethra’s Story

Nethra’s Story

Meet Nethra – Karnatka, India My name is Nethra, and I come from a small village in Karnataka, India. I...

lamellarlamellar storymember story

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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Foundation for Ichthyosis & 
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Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.