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Tag: member story

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Abby R’s Story

Abby R’s Story

Meet Abby R. – IN My Journey with Ichthyosis Hi everyone! My name is Abigail or Abby, for short, and...

member story

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Jeff G’s Story

Jeff G’s Story

Meet Jeff G. – Australia Where I Am Today As Ichthyosis Awareness Month (May) came to a close, I wanted...

lamellarlamellar storymember story

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Samiha C’s Story

Samiha C’s Story

Meet Samiha C. – Bangladesh The Story of Dr. Samiha A disease is considered rare when it affects a small...

ichthyosis vulgarismember storyvulgaris story

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Janice S’s Story

Janice S’s Story

Meet Janice S. – Canada Reflections on life with lamellar ichthyosis It doesn’t go away, but it does get easier....

lamellarlamellar storymember story

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Cassandra K’s Story

Cassandra K’s Story

Meet Cassandra K. – Tennessee My name is Cassandra. I’m 34 and live in Monroe County, Tennessee. I have a...

darier diseasedarier storymember story

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Nethra’s Story

Nethra’s Story

Meet Nethra – Karnatka, India My name is Nethra, and I come from a small village in Karnataka, India. I...

lamellarlamellar storymember story

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Carlie F’s Story

Carlie F’s Story

Meet Carlie F. – Tennessee This story includes a reference to self-harm, which may be distressing for some readers. Please...

Ichthyosis Awareness Monthmember storymental healthnethertonnetherton story

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Mia C.

Meet Mia C.  Every once in a while, “perfect timing” is more than just an eruption of coincidental moments…it is,...

member storysjogren-larsson

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Lowell W.’s Story

Lowell W.’s Story

Meet Lowell W. One of my nicknames is The Eternal Optimist. And for the most part, that is true. I...

lamellarmember story

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Christine B’s Story

Meet Christine B. I Knew, Yet I Didn’t Know – My Journey With Ichthyosis Vulgaris Christine Brush At the FIRST’s National Conference...

ichthyosis vulgarismember story

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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Foundation for Ichthyosis & 
Related Skin Types, Inc.

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EIN: 94-2738019

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Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.