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Tag: lamellar

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Htwe’s Story

Htwe’s Story

Meet Htwe T. – Myanmar Finding Dignity in the Skin I Live In My name is Htwe Than. I am...

lamellarlamellar storymember story

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Jeff G’s Story

Jeff G’s Story

Meet Jeff G. – Australia Where I Am Today As Ichthyosis Awareness Month (May) came to a close, I wanted...

lamellarlamellar storymember story

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Janice S’s Story

Janice S’s Story

Meet Janice S. – Canada Reflections on life with lamellar ichthyosis It doesn’t go away, but it does get easier....

lamellarlamellar storymember story

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Nethra’s Story

Nethra’s Story

Meet Nethra – Karnatka, India My name is Nethra, and I come from a small village in Karnataka, India. I...

lamellarlamellar storymember story

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Lowell W.’s Story

Lowell W.’s Story

Meet Lowell W. One of my nicknames is The Eternal Optimist. And for the most part, that is true. I...

lamellarmember story

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Bailey P’s Story

Bailey P’s Story

Meet Bailey P. A little girl with a sunshine smileCrazy blonde curls and eyes that dreamShe stares out her windowAnd...

lamellar

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Ahmed’s Story

Ahmed’s Story

Meet Ahmed Suffering Children and the Drawers of Happiness* It is 10 km to the school. The place is in...

Diya & Aliya Fundlamellarlamellar storymember story

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Angela L’s Story

Angela L’s Story

Meet Angela L. Loving, and Being Loved, Unconditionally by Angela Lowry-Sellerslamellar ichthyosis I was blessed to be born to two...

lamellarlamellar storymember story

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Lamellar Ichthyosis

Lamellar Ichthyosis Autosomal recessive condition characterized by dark, plate-like adherent scales covering most of the body, typically presenting with a...

lamellarLI