Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
page
news-articles
tribe_events
Donate


Tag: advocacy

DATE: 5/15/2026

A Voice That Transforms Care: Laura’s Impact on Patient-Centered Medicine

A Voice That Transforms Care: Laura’s Impact on Patient-Centered Medicine

We’re proud to celebrate Laura’s continued advocacy through her recent presentation at the BEDS (Bedside Excellence Development Series) at Northwestern,...

advocacy

DATE:

Advocacy

Advocacy What is advocacy? Advocacy is the act of pleading or arguing in favor of something, such as a cause,...

advocacy

DATE:

Advocating in Hospitals and Nursing Homes

Advocating in Hospitals & Nursing Homes Being admitted to a hospital or moving into a nursing home can bring new...

advocacy

DATE:

Guide for Working Adults

Guide for Working Adults with Ichthyosis What to Do If Ichthyosis Is Affecting Your Career Lessen the Impact Ichthyosis has...

advocacy

DATE:

Understand Children’s Rights in School

Understanding Children’s Rights in School Understanding Children’s Rights in School (Components of Section 504 and IDEA Protections) Dr. Diane Haggis...

advocacy

DATE:

Special Education Accommodations

Special Education Accomodations IEP Defined Ichthyosis affects each individual differently. Depending on the severity of the symptoms exhibited by an...

advocacy

FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

About Us

History Our People Annual Report & Financials Press Room

News & Events

Recent Articles Privacy & Permissions

Contact Us

Foundation for Ichthyosis & 
Related Skin Types, Inc.

PO Box 1067, Lansdale, PA 19446

(800) 545 - 3286

info@firstskinfoundation.org

EIN: 94-2738019

Social

Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis.  It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents.  Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here.  All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.