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A Life-Changing Weekend

FIRST National Conference brings hope, connection and community to Minneapolis

From June 26–28, 2026, the FIRST community came together in Minneapolis, Minnesota, for an unforgettable National Conference. It was three extraordinary days filled with education, inspiration, laughter, and lifelong connections.

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FIRST is dedicated to improving lives and seeking cures for those affected by ichthyosis and related skin types, or epidermal differentiation disorders. FIRST connects patients, caregivers, medical professionals, researchers, and industry partners for support, education, resources, medical access, research, and advocacy.

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Foundation for Ichthyosis &  Related Skin Types, Inc.

PO Box 1067, Lansdale, PA 19446

(800) 545 - 3286

info@firstskinfoundation.org

EIN: 94-2738019

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Copyright © 2026 Foundation for Ichthyosis & Related Skin Types, Inc.®

This information is provided as a service to patients and parents of patients who have ichthyosis. It is not intended to supplement appropriate medical care, but instead to complement that care with guidance in practical issues facing patients and parents. Neither FIRST, its Board of Directors, Medical & Scientific Advisory Board, Board of Medical Editors nor Foundation staff and officials and sponsoring foundations endorse any treatments or products reported here. All issues pertaining to the care of patients with ichthyosis should be discussed with a dermatologist experienced in the treatment of their skin disorder.