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Downloadable Guides

FIRST offers a multitude of resources to help those affected with ichthyosis manage the disorder from day to day.  From healthy living tips, to guides for teachers and school personnel, to handy ichthyosis awareness cards, you’ll have all the tools you’ll need to guide you and your community along the way.
Request printed copies for $1.50 to cover shipping costs.

Ichthyosis:  Overview
An understanding that’s more than skin deep

This booklet provides a general introduction to ichthyosis.

Ichthyosis:  Genetics
The role genetics plays in your skin


This booklet provides an in-depth look at how ichthyosis is passed from parent to child.

Ichthyosis: Caregivers
Helping your family member embrace the skin they’re in


Provides valuable information to parents and caregivers about caring for a person affected
with ichthyosis.

Ichthyosis:  Educators
Learning for the classroom and beyond

Provides an overview to introduce teachers and other school personnel to the needs of an affected student.

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