International Groups
Please note that these sites are in their native language.
- ¿Quiénes somos?Fundación Alas para Pacientes con Ictiosis, API
- Association les Racines de l’Espoir Sénégal
- European Network for Ichthyosis
- Centre for Ichthyosis-Related Members – India
- ELA Begium – primarily for Refsum disease & other leukodystofies
- FIRST Asia Facebook Group
- French National Association of the Ichthyoses and Pathological Dry Skin
- Ichthyosis Support Group: (UK)
- Ichthyosis & Acral Peeling Skin Syndrome – Phillipines
- Netherlands Ichthyosis Network
- Network for Ichthyosis & Related Keratinization Disorders: (NIRK – German)
- New Zealand Support Group – Rachel Davidson
- Polish Ichthyosis Society
- Selbstilfe Ichthyose – (Self-help ichthyosis – Bavaria, Germany)
- SHHIRT – Samuel Hardgrave Harlequin Ichthyosis Research Trust
- Spanish Association of Ichthyosis
- IchthyP
- Unione Italiana Ittiosi
