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Adults

For many at this phase of life, care routines are established and our attention is spread among careers, family commitments, relationships, and more. Carving out any time for skincare can be a struggle. Make the most out of the time you are giving to skincare.

Read on for resources that reflect member and medical professional advice.

At Work

Many individuals with ichthyosis are fully capable of performing their job duties. However, symptoms may occasionally affect certain job tasks. Employers who understand the condition can reduce barriers and create an inclusive, supportive workplace.

Guide for Employees

Learn what to do if ichthyosis is having an impact on your career and some steps to minimize the impact so it doesn’t limit your professional success.

Advocating in Hospitals and Nursing Homes

After being admitted to a hospital or moving into a nursing home it is important to make sure your skin care needs are clearly understood and met. This guide helps you advocate for your care, educate healthcare providers, and stay comfortable and safe during your stay.

Pregnancy

Pregnancy can bring unique challenges depending on your specific type of ichthyosis, the medications you use, and how your skin responds to hormonal and physical changes. This guide provides general information and helpful questions to discuss with your healthcare team before, during, and after pregnancy.

Breastfeeding

The information presented here is for the pregnant woman with ichthyosis that intends to breast feed, in addition to widely found information on breast feeding in general. Due to the nature of ichthyosis, the constant renewing of your skin cells, you may come across issues that your health care provider is not aware of.

Menopause

For individuals with ichthyosis, menopause may bring new skin challenges or changes in how symptoms appear or respond to treatment. Understanding what to expect and how to care for your skin can help you stay comfortable and healthy during this transition.

Retirement

Retirement almost always means changes in routine, income, and healthcare coverage. For individuals with ichthyosis, maintaining consistent skin care, social connection, and overall wellness remains just as important as ever. This resource provides practical guidance for managing ichthyosis during retirement and beyond.

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