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FIRST Members Invited to the Beach on Saturday, May 10th!
April 22, 2014 - Ace in the Hole Foundation will once again honor the memory of 1st Lt. Michael LiCalzi at their beach run/walk. Read More
FIRST Members Invited to the Beach on Saturday, May 10th!
Survey about therapy uncertainties in congenital ichthyosis
April 22, 2014 - Dr. Angela Hernández Martín from Madrid is asking for your help with a future study. The aim of the study is to identify existing major uncertainties in the treatment of ichthyosis. Read More
Survey about therapy uncertainties in congenital ichthyosis
FIRST to Know calls are a great way to connect!
April 21, 2014 - When was the last time you picked up the phone to talk to someone; just to check in, see what is going on? Read More
FIRST to Know calls are a great way to connect!
Ear Related Symptoms Survey Results Published
March 23, 2014 - During 2012-2013, the doctors at Boston Children’s Hospital, conducted a pilot survey study to obtain information about ichthyosis and its ear-related symptoms. Read More
Ear Related Symptoms Survey Results Published
Tapping Local Media for Grassroots Events
March 23, 2014 - any members of the FIRST community are enthusiastically raising awareness by planning unique and exciting events throughout the entire month. Read More
Tapping Local Media for Grassroots Events

 

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