Celebrating Our Anniversary
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
News and Events
Latest News
Ichthyosis – A Part of Who I am
May 20, 2013 - "Having ichthyosis makes me special. It's just part of who I am." Read More
May 20, 2013 - "Having ichthyosis makes me special. It's just part of who I am." Read More
Yale Conducting Study of a New Topical Medication
May 7, 2013 - A clinical study to investigate a new topical medication for patients with Netherton syndrome will be conducted at Yale University and Saint Louis University Read More
May 7, 2013 - A clinical study to investigate a new topical medication for patients with Netherton syndrome will be conducted at Yale University and Saint Louis University Read More
Patient Support Forum Planned for Dallas
May 2, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
May 2, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
May is Ichthyosis Awareness Month!
May 2, 2013 - From coast to coast, many members will be holding exciting awareness and fundraising events. Read More
May 2, 2013 - From coast to coast, many members will be holding exciting awareness and fundraising events. Read More
FIRST to Know Conference Calls Planned
April 20, 2013 - It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. Read More
April 20, 2013 - It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. Read More
