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Survey about therapy uncertainties in congenital ichthyosis

Date: 04/22/2014

Survey about therapy uncertainties in congenital ichthyosis, excluding ichthyosis vulgaris

Through a survey, Dr. Angela Hernández Martín from Madrid is asking for your help with a future study. The aim of the study is to identify existing major uncertainties in the treatment of ichthyosis. Dr. Hernández Martín wants to find out which are the most important therapy uncertainties in ichthyosis. In theory there are various topical choices, and even effective treatment with oral acitretin, but patients continue asking questions that cannot easily be solved. Contribute to the questions, and fill out the survey. The deadline for the survey is April 27.

The link for the survey is here:   https://docs.google.com/forms/d/1Ei98GB93q5VISDyfL09cu-14Cj0tbg91MPrq5GgbcXE/viewform

Your participation as a patient or as an expert on ichthyosis is very important, because most of these questions arise after having seen many patients with ichthyosis and probably having had the experience of living with ichthyosis and its therapies.

Thank you very much for your participation in this study and we hope we can count on you for the next step in the prioritization process.

If you have any further doubts, please contact estudioictiosis@aedv.es.

Please do not forget clicking “Send” after filling the form.