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Friends for FIRST Concert a wonderful evening!

Date: 09/16/2013


"Love was a feeling completely bound up with color, like thousands of rainbows superimposed, one on top of the other.” -Paul Coehlo


 

Until yesterday, whenever I saw a rainbow, there was no question what came to mind…

…ruby slippers.

However, yesterday, while listening to Chris Wassel here at the office, as she shared her experience at the Dane’s Friend for FIRST Concert, in Cupertino, California, the iconic image of Judy Garland, Toto in hand, singing with a voice that is arguably unmatched, was replaced.

“The concert was the kind of community support that truly takes your breath away…and it was so moving when Eric Phelps told the story of its symbol,” Chris said pointing to the cover of the concert program.

Moments later, I learned that rainbows are far more important than inspiring the wish of finding “somewhere over.” Yesterday, I found out that at the end of a long bike excursion, while healing from the loss of his son Dane, (a 3 year old boy affected with severe ichthyosis) – Eric Phelps, came upon a rainbow. In that moment, he knew that Dane was at peace.

And now,  that rainbow has become a symbol of peace and hope for a community that reaches far beyond the region of Southern California. It is a community of friends, families, doctors, advocates, artists and all those who have embraced the message of young Dane: never lose hope for a cure.

It is with much love and gratitude that FIRST extends a warm thank you to all of the performers, attendees, doctors and volunteers at the Flint Center in Cupertino for the unforgettable Dane’s Friends for FIRST Concert on September 7th.  We continue to be inspired, each day, by the eternal hope and joy of young Dane and the strength of entire The Phelps Family, and are privileged to consider them a part of ours.