• Family Conference 2014
  • Research
  • What is Ichthyosis
  • Meet our Families
  • Grassroots

Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

Upcoming Events & Latest News
Indianapolis Family Conference Details are Posted!
October 30, 2013 - We think the best way to explain why you should attend is to hear first-hand what others have said. Read More
Indianapolis Family Conference Details are Posted!
Galderma Publishes a Study of Lamellar Ichthyosis
December 9, 2013 - FIRST is excited to share that the enthusiasm of our participant members was overwhelming and the outcome produced a unique overview of life for individuals with lamellar ichthyosis Read More
Galderma Publishes a Study of Lamellar Ichthyosis
FIRST Members Invited to the Beach on Saturday, May 10th!
April 22, 2014 - Ace in the Hole Foundation will once again honor the memory of 1st Lt. Michael LiCalzi at their beach run/walk. Read More
FIRST Members Invited to the Beach on Saturday, May 10th!
Survey about therapy uncertainties in congenital ichthyosis
April 22, 2014 - Dr. Angela Hernández Martín from Madrid is asking for your help with a future study. The aim of the study is to identify existing major uncertainties in the treatment of ichthyosis. Read More
Survey about therapy uncertainties in congenital ichthyosis
FIRST to Know calls are a great way to connect!
April 21, 2014 - When was the last time you picked up the phone to talk to someone; just to check in, see what is going on? Read More
FIRST to Know calls are a great way to connect!
Ear Related Symptoms Survey Results Published
March 23, 2014 - During 2012-2013, the doctors at Boston Children’s Hospital, conducted a pilot survey study to obtain information about ichthyosis and its ear-related symptoms. Read More
Ear Related Symptoms Survey Results Published