New Parent Information

It may be perhaps the most anquishing experience you will ever know. Your baby has a skin disorder called ichthyosis. FIRST has information that will answer your many questions and help you through the challenges ahead, as you guide your child to their special place in the world.

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Caregivers' Guide: Introduction
Infant Care Sheet - Collodion Baby
Infant Care Sheet - EHK and CIE
Prenatal Diagnosis and Testing for X-Linked Ichthyosis

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