Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
#IchthyosisAwarenessMonth IAM selfie campaign
post your selfie message using #IchthyosisAwarenessMonth
WHAT’S YOUR STORY? We’ll be sharing member stories all month long! Tell us aboutyour life with ichthyosis in 500 words or less (pictures would also be great!). Maybe you’ve had a particular challenge, or maybe there’s been a special day, a special someone, or an “aha” moment you’d like to share. We’d love to hear about it – and so would other members! For members who are more inclined to videotape, than write, tell us your story on video like Bailey!
For directions on how to submit a brief video contact: Maureen Neville firstname.lastname@example.org.
Download and share our communications material
IAM is a time for the entire ichthyosis community to unite together and collectively raise our voices for the hope of better treatments and better tomorrow. And to strengthen our message, this year we are sharing downloadable IAM branding logos and graphics that can be used online or in printed materials. This united “IAM brand” will strengthen our message, increase our presence, in both the media and the community, and help us to stand up for a cause so near to our hearts.
We encourage you to use these materials on Facebook, Twitter, Pinterest, blogs, websites, flyers, press releases, event signage, or wherever you’ll be participating in IAM, throughout the entire month of May...using the hashtag #IchthyosisAwarenessMonth with all of your posts
Use the IAM 2014 logo, email banner and facebook cover when promoting Ichthyosis Awareness Month. Just right-click on the image to save it as a jpg file that you can use with your promotions...don't forget to include the hashtag #IchthyosisAwarenessMonth!
Together, we can make a difference...