Ichthyosis Awareness Month

May is now Ichthyosis Awareness Month (IAM). During this month, we encourage our families and friends to raise awareness about ichthyosis and to host grassroots events to raise money for research and to help affected individuals. IAM replaces Ichthyosis Awareness Week (IAW), which had been held in October, but often was lost among the many events and holidays in the fall; in addition, during FIRST's early years IAW was held in May.  We have returned to our tradition and to expand the celebration for an entire month. Therefore, we now celebrate Ichthyosis Awareness Month in May.

Educating your local community is very important as it can make day-to-day life much easier for those affected.  One of the easiest ways to spread the word in your community is to do an interview for your local newspaper and share your personal story.

 

Together, we can make a difference...


Blessed by Brenna

 


Our 'Young Warrior' Evan

 


   Tune Into Radio Carly


 


Confetti Skin, Beauty Within

 

Don't forget to tweet about your Ichthyosis Awareness Month activities using the hashtag #IAMpics13

* This information is provided as a medium for the free exchange of information.  Neither the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST) its Board of Directors, its Medical Advisory Board, officers, or staff endorse any treatments or products mentioned in any of the above-mentioned blogs.  Views and opinions expressed on the blogs do not necessarily reflect the views of the Foundation or Foundation officials.

If you would like to hand out an informational flyer about ichthyosis and FIRST, you may download it here!

Fundraising Ideas                                

 Awareness Ideas                                                                     
  • Auction
  • Bingo Night
  • Book Sale
  • Bake Sale
  • Candy Sale
  • Car Wash
  • Collection Jars
  • Dance
  • Donations in lieu of birthday gifts
  • Garage Sale
  • Dress Down Day at work or school
  • Golf Tournament
  • Raffle
  • Skate-a-thon
  • Collection Can – with brochures
  • Distribute FIRST brochures in your community
  • Submit your personal story to a local newspaper, radio or TV station via their news tips hotline
  • Submit your personal story to your company newsletter
  • Send a letter to your local and state elected officials
  • Send a letter to members of the US Congress
  • Contact your local chapter of community service organizations (Lions, Kiwanis, Rotary, etc.) and offer to speak at a meeting.
                     

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