Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
The UFIRST SCHOLARS Program was established in 2010 by a seed gift from Valerie & David Scholl. The Scholl’s are grandparents to an affected granddaughter who wanted to provide an opportunity for affected students to advance their post-secondary education in partnership with FIRST. Their inspiration is to provide the opportunity for students affected with a form of ichthyosis or related skin type to achieve their highest educational potential. Other donors are encouraged to contribute to the fund to help grow its capacity.
FIRST realizes that the fight against ichthyosis is not only medical, but also financial. As families of affected individuals maintain their daily routine of treatments, it can be complicated by the ongoing costs of medical supplies and other comforting aids and procedures.
Thanks to the generosity of an anonymous donor, FIRST has established the Jane & Henry Bukaty Skin Care Fund to help alleviate some of the financial burden that may be facing our members. Here’s your opportunity to apply for some financial assistance for ichthyosis treatment.