Celebrating Our AnniversaryEducate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
The Honorable ____________________________
House (or Senate) Office Building
Washington, DC 20515 (20510)
Dear Congressman/Senator ______________:
As a constituent who votes, I am writing about an issue that is very important to me: medical research funding. Specifically, I am writing to urge you to support an increase in funding for the National Institutes of Health (NIH) during fiscal year 20__.
I [my child, my friend, etc] have a rare skin disease called ichthyosis. Research at the NIH is key to making much needed progress in treatments and, hopefully, a cure for ichthyosis.
Ichthyosis is a family of genetic skin diseases characterized by severely dry, thickened, scaling skin. Symptoms of ichthyosis range widely depending on the variety of ichthyosis involved. My ichthyosis is [personalize]. As you can imagine, life with this disorder comes with many physical and social complications.
Research on the genetics of ichthyosis and improved treatments is vitally needed. Increases in the NIH budget led to great advances in genetic research for some types of ichthyosis. However, there is still much work to be done. [personalize with a few sentences]
Investing in research at NIH will lead to better treatments and better lives for patients living with rare diseases like ichthyosis. Please support an increase in NIH funding in the coming fiscal year.
Thank you for your consideration.