Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Highlights from the 2014 National Family Conference in Indianapolis are coming soon!
Highlights from some past conferences:
Past conferences have been held:Members of FIRST come from all over the world to attend this three-day event. FIRST provides lectures by leading physicians about ichthyosis, open discussion groups and child care activities. It is a chance for people affected by ichthyosis to meet others who share similar life experiences and related issues. The friendships that are formed at the conferences last a lifetime!