Mission Statement & Core Values

Mission Statement
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, education, advocacy, and research funding for better treatments and eventual cures.

Core Values
Compassion - We are a caring organization recognizing the unique challenges faced by our community and will provide support with kindness and empathy.

Hope - While celebrating today's strengths and successes, we strive to convey to all individuals affected by ichthyosis that the future will be filled with friendship, support and a cure for ichthyosis.

Integrity - We will conduct ourselves in a trustworthy, ethical, and reliable manner in everything we do and say.

Responsiveness - We provide accurate and timely information about ichthyosis to meet the medical, social and educational needs of our community.

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