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DeDe H. is the mother of adorable 2-year-old Evan F., who was born with Harlequin ichthyosis. DeDe held her campaign in her hometown of Goshen, Connecticut. Her family, friends, and local businesses responded tremendously. Dede’s efforts raised more than $4,000! |
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Jolie C., a wonderful advocate for FIRST, held a Penny Challenge at Bright Horizons pre-school in Roseland, New Jersey, where her children are students. Jolie decorated canisters with photos of her adorable children, Portia and Myles, both of whom are affected with ichthyosis en confetti, and placed them in classrooms at the school. Students and faculty alike made donations and raised more than $200 for FIRST. |
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