Celebrating Our Anniversary
Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Golf Outing - California (2006)
Napa Valley Style
Napa Valley residents and Foundation members, Josh and Amie DeGarmo, hosted a golf tournament to benefit ichthyosis on July 12, 2006, at the Silverado Country Club in Napa, California. The DeGarmo's sons, Jaydn and Carson, are affected with lamellar ichthyosis. Key volunteers, Richard and Lois DeGarmo (Josh's parents), and (friend) Robert Larson, helped to organize the event and draw in local businesses as sponsors. Sixty-three golfers headed out into the California sunshine in a noontime shotgun start. A Silent Auction and dinner followed the rounds of golf with 103 guests in attendance. Jim Griffin, a California native and founding member of the Foundation, delivered heartfelt remarks. This event raised over $12,000 in proceeds. Josh and Amie plan for this to be an annual event and would be happy to help other Foundation volunteers plan a similar event in their communities.
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Napa Valley residents and Foundation members, Josh and Amie DeGarmo, hosted a golf tournament to benefit ichthyosis on July 12, 2006, at the Silverado Country Club in Napa, California. The DeGarmo's sons, Jaydn and Carson, are affected with lamellar ichthyosis. Key volunteers, Richard and Lois DeGarmo (Josh's parents), and (friend) Robert Larson, helped to organize the event and draw in local businesses as sponsors. Sixty-three golfers headed out into the California sunshine in a noontime shotgun start. A Silent Auction and dinner followed the rounds of golf with 103 guests in attendance. Jim Griffin, a California native and founding member of the Foundation, delivered heartfelt remarks. This event raised over $12,000 in proceeds. Josh and Amie plan for this to be an annual event and would be happy to help other Foundation volunteers plan a similar event in their communities.
« Back to Previous Page