Have you been on a FIRST to Know Call?
The past FIRST to Know conference calls have been well received by our members. It is wonderful to have individuals talking to one another, sharing tips, and sharing stories and challenges. There have been requests from our membership to add disease-specific calls to the calendar. This is a great way to "meet" other families with the same ichthyosis type. Dates and topics have been designated for the next series of FIRST to Know conference calls. To join one of the conference calls listed below, simply RSVP to Moureen by emailing her at email@example.com, or call the national office at 1.800.545.3286. A call-in number will be sent to you via email. All calls are held in Eastern time and are phone calls only, so you only need a phone, not a computer.
Thursday, February 21 - Lamellar: Connecting Families Together
Tuesday, March 5 - Netherton syndrome: Connecting Families Together
Tuesday, March 26 - EI: Connecting Families Together
Tuesday, April 9 - X-linked: Connecting Families Together
Thursday, April 25 - Teens Rock: An Open Dialogue for Teens, with Teens
Tuesday, May 7 - Aging Skin: How is Your Skin Changing?
Wednesday, May 22 - Darier Disease: Bringing a Community Together
Thursday, June 6 - Vulgaris: Connecting with One Another
Tuesday, June 20 - Time for College: Transitioning from HS to College
Wednesday, July 10 - Infections: What Are They?
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