FIRST Day at the Pirates (2014)

Laban, Bailey, Emma and Calvin

FIRST's Day at the Pittsburgh Pirates on May 4th was a smashing success! We'd like to extend a heap of gratitude to the Kocher family, whose son Calvin is affected with ichthyosis, for their great efforts in pulling this event together. In addition to the Kocher family, three other affected individuals and their families joined in the festivities.  The Horr family, whose son Laban is affected with lamellar ichthyosisFIRST board member Tracie Pretak and her daughter Bailey, who is also affected with lamellar, and the Allenbaugh family, whose nine-year-old daughter Emma is affected with Sjogren-Larsson syndrome and was meeting people with "skin like hers" for the first time, all joined together to create a great day of awareness, friends, family, and of course fun!    We are so thankful that so many families were able to connect and enjoy a relaxing evening with new friends. Ticket sales for the game brought in nearly $4,000 in donations to FIRST. Wow! What a difference you all are making!

     

 



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