Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Thank you for taking the time to provide this information.
A crafty idea to raise money
FIRST member Sarah Hodgkinson is an avid scrapbooker and very good at crafts. Since her family was not able to attend this year’s conference because school was still in session in her area, she came up with an idea to be there “in spirit”. Sarah, along with some help from her family and good friends, designed an “Ichthyosis Awareness Bookmark.” She designed it and then set out creating them for FIRST to sell at our kiosk at the Family Conference. Sarah and her team worked marathon hours over the course of a weekend putting together the bookmarks. She then shipped them to Orlando where they were available for purchase for $2 each or 3 for $5. All of the proceeds from the sale of the bookmarks have been donated directly to FIRST. The bookmarks were very well received at the conference. There are still some available for sale at the FIRST office. If you are interested in purchasing a bookmark, visit FIRST's marketplace.
We are happy to provide you with free access to our electronic library. Please enter your contact information below and you will be immediately emailed a password to access this content.
Information provided will only be used for FIRST activities and remain confidential. We will not share your information with any third parties.