Arts & Crafts in Maine | Foundation for Ichthyosis & Related Skin Types (FIRST)

Evan (right) with his brother, Harrison

Labor Day Art in the Park

Patti S., grandmother of 6-year-old Evan M. who is affected with epidermolytic ichthyosis (EI, which was formerly called EHK), participated in Art in the Park in Fort Williams, Maine.
The Art in the Park event took place over Labor Day Weekend in Fort Williams, Maine. Patti set up a table to display her wares and had help from her grandchildren, Evan, and his older brother and sister, Harrison and Sophia. In addition to Patti’s items, Sophia and her friend made butterfly necklaces and sold them at the family booth. Patti’s grandchildren were great ambassadors for FIRST, educating art fair visitors about FIRST and EI and handling the sales and promotions throughout the day.


Sophia (right) with her friend, Abby, selling their necklaces

	Visit Patti's etsy.com shop
	View the poster that Evan created Posters were created and generously donated by winkflash.com

« Back to Previous Page

First Name: *
Last Name: *
Address: *
City/Town: *
State/Province: *
Postal Code: *
Country:
Phone:
Mobile Phone:
Email: *
Please share with us how ichthyosis affects you or your family:

Arts & Crafts - Maine (2011)