Founded in 1981Educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Jane's 5K for a Cure
Sunday, October 27, 2013
Washington County Ag Center
Hagerstown , MD 21742
5K to benefit FIRST. Hoping for a cure for Harlequin ichthyosis, a rare skin disorder with extreme symptoms. Jane is a 4 year old girl with Harlequin ichthyosisI. There is very little research and awareness and our mission is to create both!