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Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

Upcoming Events & Latest News
Highlights from the 2014 National Family Conference in Indianapolis!
The conference, held in Indianapolis, was filled with workshops, panel discussions, entertainment, and special opportunities for connection, was an astonishing success! Read More
Highlights from the 2014 National Family Conference in Indianapolis!
News from Galderma Regarding Research Study
July 8, 2014 - An update to their research. Read More
News from Galderma Regarding Research Study
Announcement from GeneDX
June 5, 2014 - Congenital ichthyosis and related disorders of cornification of the skin are a clinically and genetically very heterogeneous group of genetic disorders. Read More
Announcement from GeneDX
Beach Run & Walk a Great Success!
May 15, 2014 - Ace in the Hole Foundation hosted its fifth annual Lido Beach Run/Walk at Lido West Beach on Long Island, New York. Read More
Beach Run & Walk a Great Success!
FIRST Member Featured on WebMD
May 6, 2014 - Courtney Westlake blogs about surviving and thriving. Read More
FIRST Member Featured on WebMD