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Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

Upcoming Events & Latest News
FIRST Member Running the Chicago Marathon
September 29, 2014 - FIRST member Jacky Osowski will be running the Chicago Marathon to raise money for FIRST. Read More
FIRST Member Running the Chicago Marathon
Jean Pickford Goes to Capitol Hill for 2014 AADA Legislative Conference
September 17, 2014 - With more than 100 dermatologists, advocacy representatives, and political insiders, the conference is the foremost meeting focusing on political issues that affect dermatology. Read More
Jean Pickford Goes to Capitol Hill for 2014 AADA Legislative Conference
The Benefits of Genetic Testing
September 17, 2014 - genetic testing is a means of looking at a person’s DNA to identify the specific mutation that causes their condition Read More
The Benefits of Genetic Testing
FIRST Announces 2014 UFIRST Scholar Recipients
September 16, 2014 - FIRST is proud to announce the ten 2014 scholarship recipients of the UFIRST Scholars Award. Read More
FIRST Announces 2014 UFIRST Scholar Recipients
New Survey on “Ichthyosis Research Prioritizing” from the ASIC and AEDV
September 16, 2014 - Imagine there is funding for only 10 research studies and a need to prioritize the most important uncertainties. What type of ichthyosis research would you support? Read More
New Survey on “Ichthyosis Research Prioritizing” from the ASIC and AEDV